Slightly over 40 years ago, when I was in graduate school, “Business Ethics” wasn’t a separate course, but it was a section that was covered in several courses. A wide variety of topics were covered in these sections, but there was always one caveat – as young men and women eager to enter the job market, we were advised to “hang onto these concepts until you’re comfortable in your position” – in other words, we shouldn’t expect to be calling the ethical shots anytime soon.
Fast-forward to 2018, and almost every provider/user of technology is facing ethical challenges. An alarming abundance of data is being gathered by applications, shared via social media and sold between organizations. Technology is evolving and expanding so fast that ethical boundaries are often crossed without people (those gathering data and those from whom data has been gathered) even being aware of their location.
Last week, I was reading an article about the rising number of college courses, and even degree programs in ethics in medical technology. Unfortunately, the article was in a proprietary publication and I can’t share it. Medical professionals operate under a code of ethics, less so pharmaceutical companies and health insurers. So, I was pleased to see a long list of seminars like “Technology & Mental Health” being offered by the School of Social Work Continuing Education • University of Pittsburgh – the university I attended. The following snippets are from the brochure:
“This workshop will discuss, review, and experience the latest technology solutions for the social work profession in the mental health field. The program explores ethical dilemmas and clinical challenges that exist when considering the use of technology in the delivery of social work clinical interventions and documentation with a focus on the updated Code of Ethics.
Be familiar with technologies that are already present in the health care space…and potential ethical issues related to using them, including boundaries, confidentiality/privacy, informed consent, and competence.
Articulate challenges to privacy related to using video technology and health apps with clients/patients and families.
Explore the role of health care professionals in helping children and families understand how to safely use and navigate the on-line world.
Explore the need to create inter-professional relationships with technology professionals as a part of competent, ethical practice.”
From my point of view, the last topic is the most important. Technology professionals need to better understand how and why data is used and how it should be controlled. I could go on, but I’m bumping up against the word limit. I’ll leave you with this thought: Right now, we have to be our own advocates. We have to protect our data. We have to ask questions and demand answers, and we have to learn more about the ways in which data is collected, used and how it can be protected. I am encouraged by the growing number of courses and seminars, and I encourage everyone to consider taking advantage of educational opportunities in your profession.
The “We are the World” Blogfest has extended its year-long journey and is in its 17th month. This blogfest’s goal is to spread the message of light, hope and love in today’s world. We are challenging all participants to share the positive side of humanity. This month’s co-hosts: Eric Lahti, Inderpreet Uppal, Shilpa Garg, Sylvia Stein,and Peter Nena, welcome participants and encourage all to join in during future months. #WATWB is a blog hop on the last Friday of every month. Click HERE to check out the intention and rules of the blogfest and feel free to sign up at any time between now and February of 2019.
Tim berners-lee’s new Inrupt service seems interesting. Giving people the control back of their data. Launches soon.
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I hope it catches on.
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Hopefully, a good counterweight to the existing.
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Hi Tim – that looks to be a fascinating change of events … and excellent news … I will definitely be following to see what happens – thanks for letting us know.
and Dan excellent that this post generated Tim’s comment – so glad to know …
Cheers Hilary
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Thanks Hilary. That’s what I love about this community – we can all learn.
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Ethics is a concept that seems to be in short supply, like morality, common sense and common decency. I hope it makes a come back.
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It is starting. A lot of programmers and “data scientists” are refusing to work on projects or for companies that have questionable ethics.
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I agree with Quiall. We don’t spend enough time on ethics and morality these days…teaching children and reminding adults of their importance. Where I work, the ethics classes available have more to do with human interaction than being IT related. We’ve had to learn hard lessons, though, in appropriate use of the computers and the internet, and how ethics play a part. This is an interesting and good story for #WATWB. Thanks for sharing, Dan.
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You’re correct, we don’t spend enough time. Ethics classes are still often electives, and the only training of this nature we get, is what’s mandated by law (and that’s usually anti-harassment training). We routinely see information being gathered that is not related to the transaction being processed. These are all things that need to be addressed.
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So much of that in the field of medicine with the advent of EMR systems. It can be mind boggling. We are being for d to utilize every aspect of it and many patients-myself included-have far reaching concerns. Education is the key to good decision making in all cases.
What a beautiful cathedral. Reminds me of the Louisiana State Capitol building.
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I attended graduate school in that building. It’s also where these classes are being taught. I forgot to mention that. Medical systems are ripe for abuse, especially when you have staff, who might be trained, acting on behalf of Doctors who may not understand the systems all that well.
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Personally I am against shared information across medical practices. A lot of patients think it’s great. I prefer my privacy intact between myself and my repective caregivers.
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There are pros and cons on both sides. It can be beneficial but it can cause huge problems if anyone has a breach.
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In the late 1980’s, I built a case management system for the Minneapolis Police. No sooner had we brought it online than the police received a request from a weekly list of all burglaries and break-ins from a company that sold alarm systems.
My reaction was, you got to be effing kidding me.
Nope, we had to put aside all our investigative and crime analysis projects in order to help some slime-balls market alarms to people who just had their lives up ended.
It brought to mind something the cops are always fond of saying, in the next world you get justice and ethics, in this one you get the law.
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That’s amazing. We get calls every week asking for information (most say they are conducting research) that no one outside the transaction should have. They try everything, including “I was speaking with (my boss) and he thought you could help me…”
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In this case under open records we were compelled to give it to them. We actually had to stop doing the business of law enforcement and write a report that produced their list every week
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That’s crazy!
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I think there should be more ethics in business and government. I was fortunate to go to a business school where ethics was an everyday part of the curriculum. Super post, Dan
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Thanks John. There really should be more emphasis on this.
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I agree.
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Ethics and technology – too often the answer seems ‘we have our best technicians working on how to abuse this’. The Experian Dark Web commercial is the most prevalent example. A company gets hacked and allows your personal data to be stolen and then tries to sell you a service to protect your data. Now there is a case of technology enhancing the meaning of the word ‘irony’ a hundred or a thousand times. At a personal level there is the case of a very prominent medical institution where patient medical data is HIPAA data is very important. Unless it was employee medical data. Then the institution could do what they want with it. Including use it to charge different rates based on your personal medical data. So much for it being private between you and your doctor. At the risk of being called a skeptic I will believe it when I see it. Yes there are signs of hope. And yes there are signs of rampant abuse by organizations claiming to have the highest of standards. And that includes Facebook and our elections.
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I’ve been ignoring weekly attempts to get me to sign up with our insurance broker’s “wellness” program. They are not my insurer, not my doctor, but they want to know what I eat, what medications I take, how often I exercise and the results of every medical exam. I refuse to participate but they keep trying to get me to log into the account they’ve already set up for me.
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Dan – that just about describes it. Don’t give in. I would block them as spam. That is me though. You do what you feel is right.
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They only let you block everything or nothing. Unfortunately, I have to read some of the stuff they send.
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I hope your develop strong filtering skills. Or to put it another way – Don’t open that door ! Don’t go in that room !
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Thanks John. Sound advice.
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Very good points Dan, and interesting curriculum.
I always love your photos of this place. It must be so inspiring to go there. Hugs.
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Thanks Teagan. I think it’s my favorite building ever. I was so lucky to attend classes there.
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Hi Dan – I will definitely be following Tim Berners Lee’s new organisation … while in the UK we have the Open University – that has a full range of programmes available. It’s interesting how organisations are rethinking their ways of working … the Oxford Martin School that I posted for my August #WATWB article discusses ethics in the short 27 minute video … I came across a Cambridge School that was also bringing various disciplines together benefit from the interaction of leading brains.
We live in interesting times and as you’re in forefront of business life – you’ll see it from the inside … I just tick along now learning as I go … blogging certainly opens doors … cheers Hilary
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In most cases that I’m aware of, organizations are responding to pressure from their own employees. At least they are listening to someone. There are also colleges that are combining technology degrees with humanities and social sciences instead of just math. We may see some changes in the near future.
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“Right now, we have to be our own advocates. We have to protect our data. We have to ask questions and demand answers, and we have to learn more about the ways in which data is collected, used and how it can be protected.”
I’m totally with you on this. Thanks for putting it so well.
About medical ethics . . . there was an article in Nature some years back about a meeting scientists had on whether to edit the human genome or not. They couldn’t agree on why they shouldn’t do it. The UK gov’t already allowed editing of human genome to be carried out, collecting mitochondrial DNA from two mothers, etc.
Thanks for the #WATWB post.
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Thanks Peter. Why we shouldn’t do something will always be the hard question. Once we do it, then there are a thousand questions – when do we do it? Who benefits? How much money can we make? Can we weaponize it? Etc.
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Ethics in many professions and lives seems to be in short supply these days, much to my dismay and our general downfall. I’m glad to read that more classes/companies are attempting to deal with the lack, but ethics need to be personal to work at the corporate level. That’s an entirely different problem. The idea that there doesn’t seem to be right and wrong these days is a huge issue as well.
janet
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Thanks Janet. These things are in short supply and often are under fire. There are “good decisions” not being made to save a few cents on things like automobiles and major appliances. I think this has to come from the bottom up and from the top down.
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I think most people are ethical. Unfortunately, many who are not have the money, power, and ability to exploit the rest of us. We must remain our own advocates and protectors.
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I do think most people are ethical, but not all of them understand the consequences of their work. I like the fact that there are more opportunities to learn about these issues.
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Interesting. I feel like while we may need to protect ourselves, the platforms have made it burdensome and what can you even use without agreeing to the terms? I feel more like prey.
Never too young or low on the totem pole to use ethics, but writing policy or implementing change, yeah. There’s that, and greed, too.
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“…and greed, too.” I think you nailed it. Collecting data because we can use it to help our customers is fine. Collecting data about our customers because we can sell it – that’s different thing. Collecting health data about our patients because we can sell it, is often and should always be illegal.
It is extremely hard to ignore, or opt-out of terms that let them abuse the relationship. You can not use the service, but it’s becoming harder to find alternatives.
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You have my full support against the selling of medical records. Even the policy of ‘accidentally forgetting to maintain the database by failing to delete old records’ is a frequent issue. If we can’t trust they’re deleted in a timely manner, how can we trust they’re not being sold?!?
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Good one. Even before I became a blogger I wrote a poem about Ethics on Sale. I have come a long way from what I was when I was 18. When I began my career, honesty and ethics became a challenge for me. They hired me for my honesty but they never liked me when I was honest to the customer I was speaking to. They wanted me to bend the rules, the same rules that they boast about when they talk highly of their company. It was a learning experience to read between the lines and understand that not everything the company writes in their vision and mission statement is what they follow. To some extent that has corrupt and rob me of the truthfulness in me, but I still manage to balance it out.
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IT is a difficult balancing act, Sharukh. I commend you for even trying.
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This is one of those posts where the comments section is equally interesting and thought-provoking. I worked in data management for the last dozen years of my career including privacy and security. Thankfully the company I worked for had high ethical standards and I was proud of the standards we maintained.
I was equally grateful that I was in a position to walk away when the leadership of the company changed and the concept of ethics became a little too loose for my liking. Not everyone is in a position to walk away from their job and unfortunately I don’t see a lot of companies walking the talk – unless there is a risk of public exposure.
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You were lucky to be be able to walk away. When I was 2 years out of college, the company I worked for started down a road that was questionable from an ethics point of view. My boss quit on principle. I wasn’t happy, but I wasn’t able to quit. I worked there for about a year before I was able to find another job.
It’s getting to be hard to think about all the ways companies can slip over the line.
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I was lucky. It’s not fun when you’re stuck in a job that makes your ethics meter red-line.
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I’ve been there – it’s not fun.
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In the quote you gave, I didn’t see anything about the patient, which, in my opinion, should be the one and only major concern for social workers and other health professionals. I’m a starched believer in going to the patient for their opinions and input. So far, I have found that few medical professionals do this. This makes a huge difference as to what data is private and what data is share, even with other “professionals”.
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I would agree that there has to be more interaction between the medical staff and the patients. I don’t have much hope for that, since a medical exam that goes beyond 15minutes is becoming rare. People need to understand what’s at stake, and they need to understand who those partners are. The company through whom my employer obtains health insurance (not the insurer, just a business group functioning as a broker) has set up a “wellness” program. They want me to join, and to share gobs of personal health information. One of their “partners” is Amazon. I have refused to sign into the program, but they remind me every week. The conditions of our agreement, and the limited way in which they allow you to opt-out, means that I can’t stop these emails without risking losing valuable information. I wish there were better options and I wish we didn’t have to fight for ourselves to get them.
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I’d say technology has gotten far enough along now that it’s dehumanizing our world as we know it. Maybe it’s time to pull the reigns taut on it while we still can.
I used to work with insurances when I worked at a major hospital. I’ve also worked at the regional office of an insurance company doing the prorating. It seems weird and, well, wrong to have a business group acting as a go-between. A lot of bad things can happen that way.
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Ethics and technology need a much stronger relationship than what they have now. A great post — one that made me think — and your readers added quite a bit in the comments section. Thanks for the read, Dan!
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Thanks Laura – I really enjoyed the comments on this post. I love this community – I learn so much from people here.
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A crucial and complicated topic. When I worked as an addictions counselor, I had to take ethics every two years for recertification. Prescribers having access to all of a patient’s controlled substance prescription records has helped reduce abuse and hopefully addiction. Though I’m sure some people suffering from active addiction weren’t happy about it in the short run.
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That’s interesting. I would have never thought of that.
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It was like a whole nother world.
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